Check out the VisibilOT Podcast, a resource dedicated to raising awareness, providing education, and advocating, for individuals with invisible disabilities and chronic conditions.
The Bateman Horne Center aims to empower patients, advance research, and improve clinical care for all those impacted by ME/CFS, FM, post-viral syndromes, and related comorbidities. VisibilOT is not directly affiliated with the Bateman Horne Center-- however we highly recommend them as a resource.
The Solve ME/CFS Initiative (Solve M.E.) is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid and other infection-associated chronic conditions and illnesses (IACCIs). VisibilOT is not directly affiliated with Solve M.E.-- however we highly recommend them as a resource.
The Long COVID Alliance is a network of patient-advocates, scientists, disease experts, and drug developers who have joined together to leverage their collective knowledge and resources to educate policy makers and accelerate research to transform our understanding of post-viral illness. VisibilOT is not directly affiliated with the Long COVID Alliance-- however we highly recommend them as a resource.
Workwell’s mission is to focus on research concerning the functional aspects of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), long COVID, and
other fatigue-related illnesses to facilitate an understanding of the biological
basis for fatigue and post-exertional malaise (PEM). VisibilOT is not directly affiliated with the Workwell Foundation-- however we highly recommend them as a resource.
Long COVID and Fatiguing Illness Recovery Program ECHO: The aim of the webinar-style program is to rapidly disseminate post-acute Sequelae of COVID-19 and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome findings and emerging best practices.
This program is intended primarily for providers who care for patients with Post-COVID Conditions (PCC) and ME/CFS but is open to all health care professionals and all Long COVID and ME/CFS patient-lived experience experts .
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Lisa sits down with Chris Werge, who shares his personal journey living with long COVID. Chris opens up about the challenges he has faced, from navigating various treatments and their uncertainties to managing the profound impact of the condition on his daily life.